Data Management and Research
In order to report accurately on the success of this programme follow-up data is required for many years from completion of each child’s treatment. Most children are not deemed successfully cured until they have reached 3-5 years post treatment. (Burkitt’s Lymphoma is one of the only exceptions. These children are considered cured if they remain disease free 12 months from completing chemotherapy).
A database programme is being designed/completed to capture all relevant and locally appropriate data. Data from all children attending paediatric oncology services in Tanzania will be included in this database. This will be kept up to date daily with a data management team and an effort to input the data of historical cases from the last 2-5 years will be made (understanding that charts may be incomplete or missing). It will help enormously to identify all areas of care that need to be strengthened including those children lost to follow-up.
reviewing the reports obtained from the database will be used to target clinical areas needing support or research in order to continue to improve all services offered to the children of tanzania needing oncology care treatment. in meantime the information regarding the children is collected and maintained manually.