Our Five Year Plan 

 

Over the coming 5 years Tumaini la Maisha aims to reach ALL CHILDREN WITH CANCER in Tanzania leaving no child behind. That is estimated to include 3,500- 4,200 children annually.

 

Our strategic plan consists of six (6) main components. All of these components are achieved by collaborating with the government and the private sector. This public-private-NGO effort is focused on the following:

Component 1 - Clinical Services

  • Supporting paediatric cancer services at MNH

    • Build a custom designed paediatric oncology ward including:

      • Piped wall oxygen

      • Isolations rooms

      • Secure and safe chemotherapy preparation facility

      • Procedure and counselling rooms.

    • Build and support a Paediatric Intensive Care Unit at Muhimbili National Hospital

    • Strengthening MNH laboratory services especially pathology, specialist haematology and microbiology services to improve diagnostics and supportive care for all. Improvements so far include:

      • Establishment of paediatric leukaemia diagnostic services at MNH – with Flow Cytometry

      • Access to Minimal residual disease testing for leukaemia children

      • Rapid accurate testing for Burkitt’s Lymphoma at MNH using FNA flow assessment

      • Special pathology service access for all challenging paediatric cases through our twinning partner in Crumlin hospital in Dublin, Ireland.

 

  • Creating the National Network of Collaborative Paediatric Oncology Centres

  • The current top priority is the creation of a network of collaborative Paediatric Oncology centres throughout the National Hospital network in Tanzania. (4 hospitals are currently collaborating in this network– MNH, KCMC, BMC and SENGEREMA HOSPITAL, more are planned to join in 2018). All these participating centres have access to the following:

    • Centralised procurement and dispersal of sufficient quantities and quality of chemotherapy drugs to all participating Centers /Hospitals.

    • Standardised national medical and nursing treatment guidelines for implementation on all paediatric oncology wards across the country thereby standardizing care. (CURRENTLY UNDER REVIEW AT A NATIONAL LEVEL)

    • Fast-tracked centralised specialist pathology services for suspected childhood malignancy diagnostics

    • Centralized oncology advice and support to all our participating partners through virtual platforms and weekly conference calls so that each child is discussed by a specialist panel of experts no matter at which participating site the treatment is delivered.

    • Nutritional assessment and support designed locally for all children with cancer at participating centres.

Component 2 - Non-Clinical Support

  • Provide psycho-social support for children on treatment and their caregivers at Muhimbili National Hospital through play-therapy, child-life programmes, education – 2 teachers and extra-curricular skills programmes.

  • Providing a home away from home hostel for children and their carers when home is simply too far away – a 22 bed hostel has been built and has 100% occupancy!

  • Develop curricula and teaching/support material that is locally appropriate and open source accessible to all participating sites.

    • A patient pathway story book

    • A carer guide

    • A play therapy manual

    • Story books about chemotherapy, radiotherapy

    • A video cartoon explaining cancer in simple terms.

  • When required provide transportation to and from hospitals for the children on treatment.

  • Support similar programmes at other collaborative centres / hospitals and provide a written blueprint for all centres to provide these services. This includes all generated teaching material required to run these programmes.

Component 3 - Education of Professionals and provision of specialist services

  • Facilitate formal and informal, local and international, training for all staff involved in the care of children with cancer including paediatric oncologists, surgeons, and other specialist doctors, nurses, laboratory staff, clinical engineers, administrators, teachers and play staff. Formal course already developed/run include:

    • A 2 years MSc in Paediatric Oncology – for paediatricians to subspecialise.

    • A 10-week short course in paediatric oncology nursing

    • Advanced paediatric life support programmes

    • Paediatric Early Warning Score programme

  • Set up and maintain twinning programmes between partnering health and education institutions, internationally and within the country. There is a formal ESTHER approved Twinning programme between MNH and Our Lady’s Children’s hospital in Crumlin, Dublin – facilitated and supported by TLM.

Component 4 – Data Management

  • Set up and maintain a National Paediatric Oncology Database at all participating centres/ hospitals.

Component 5– Outreach: follow-up and awareness

  • Increase the number of tertiary centres / hospitals to participate in this collaboration

  • Improve awareness of early warning signs of childhood cancer among health professionals and the general public through targeted initiatives

    • information leaflets have been developed.

    • In 2018 hope to launch a national awareness campaign which is being planned currently.

  • Increase awareness of the network of centres treating children’s cancer in Tanzania by working with the MoHCDGEC.

 

Component 6 – Strengthening and Growing the TLM NGO

  • Continuing to support the professional development of all TLM staff and grow our team as required.

  • Strengthen the fundraising activities based in Tanzania.

  • Develop joint partnerships with charities interested in supporting our services. – Many such partnerships have been developed links with:

  • Work closely with our sister charities in Ireland and the UK and expand our footprint to other countries.

We Are TLM

TLM is a Tanzanian based NGO dedicated in providing free and curative care for all children with cancer in Tanzania

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